It’s Tuesday Talk!
So many of you have checked on us over this last month, sent us encouraging notes and messages, prayed for us…you guys are absolutely AMAZING! We are four weeks out from surgery and doing pretty well. It was ROUGH there for a week post-op, but thanks to her amazing doctors, nurses and the strength and tenacity of truly one amazing eight year old girl, we’re on the other side of this big mountain we had to climb but still working our way down. This particular surgery was so physically taxing but also emotionally exhausting as well. I would love to say “we’re all back to normal over here”, but we’re not. We’re better each and every day…but we’re not quite one hundred percent yet. This has been really hard. I am so very thankful for your prayers and support because we have (and still do!) needed it.
This particular surgery was much more invasive and the post-op swelling was more than anticipated, but we were able to remove the hard cast three weeks early and then last week, we were able to remove the soft cast as well…so this girl is officially “free to be a kid” as her surgeon said. So, we’re working on that right now. For sweet Ashby, she knows that just because this one surgery is over doesn’t mean this all won’t happen again. Some days have been hard.
We haven’t set a date yet for her next surgery…a thought that makes me really want to cry…so in the meantime, we’re going to enjoy this sweet time between surgeries. Our prayer is always first and foremost medical interventions that eliminate Klippel-Trenaunay Syndrome all together, but we also pray for doctors and their wisdom as they guide us to next steps. Ashby has begun to complain of “heaviness” which is very common with KTS patients, so if you’re looking to pray even more specifically, please pray for that to subside. I do not know what the future holds for Ashby…and sometimes, all of the “what ifs” makes my mama heart very afraid, but God is using Ashby in the here and now to do big things for His kingdom, so I can’t even imagine what He’s planning to do with her in adulthood.
Again, from the very bottom of my heart, thank you for reaching out and checking on us over the last month. You truly have no idea how much you’ve blessed all of us here at the Shull house. xo