Hey friends, I hope you had a great weekend!! We had #allthesports this weekend and then today, our kiddos are off from school, so everything feels a bit upside down. It works out well that we don’t have school today because unfortunately, Ashby and I are headed back to the hospital for more testing and to meet with a second “new” doctor. I’ve had so many of you comment, email and DM me checking on Ashby, so I thought I’d give you a little info today and a few prayer requests for those of you kind of enough to pray for us.
Ashby and I took this pic on Wednesday morning right before her appointment with the new doctor. We had been praying for this appointment for so long and were excited to chat with this doctor about what’s next for sweet Ashby. On the way there, we talked about how nice it was to go to the hospital for a quick visit, she’d be back at school before recess and lunch, and there would be no needles, poking, silly juice or anything bad. It was going to be a great day!
Fast forward about four hours, and we both drove home in a fog.
Just to recap, Ashby has two “main” surgeons and one of them has stopped seeing patients to focus fulltime on teaching at the medical school…she was SO amazing and we loved her SO MUCH! She operated on my child TWENTY times, so to say we were sad to see her go would be a huge understatement. Ashby was her “last” patient (in her career, how crazy cool is that?!), and now that she’s transitioned fulltime to teaching, she passed us on to a colleague who we had briefly met in January 2020 when she scrubbed in to assist in Ashby’s 20th surgery with this particular doctor. So, that’s the backstory there.
The new doctor is super sweet, super brilliant and we already really like her. The problem was that she immediately saw things she didn’t love…which lead to a rollercoaster of a morning for us…so many things happened at once, I felt very overwhelmed and frazzled (which, I typically feel on top of Ashby’s health), and since I was by myself (thank you, COVID), I was being asked to make decisions quickly without Andrew right next to me.
I’m not ready to get into everything, but we are now needing to tackle Klippel-Trenaunay Syndrome in a whole new way with a bit more urgency than we have had to in the past due to some complications. I talked to Ashby’s other surgeon (who I LOVE SO MUCH and who did the latest and most extensive surgery on her back in September), and with the opinions of a few other doctors, we’re going to transition into some other ways to keep Ashby safe and healthy.
So, today, we’re off to meet another “new to us” doctor.
1: PEACE!! Please pray that everyone has peace but especially Ashby!
2: WISDOM!! I pray that all of her doctors have wisdom and that Andrew and I have wisdom to make the right decisions.
3: HEALTH & SAFETY!! You never want to have a conversation with a doctor about your child having a pulmonary embolism. Please pray that Ashby stays safe and healthy. Please pray especially for that.
Thank you so much for loving our sweet Ashby the way you do! I wouldn’t ask you to pray if I didn’t think you really were going to. I KNOW many of you are praying. Not only do you tell me you’re praying, but we feel your prayers. xo